| UPDATE!!! UPDATE!!! UPDATE!!! UPDATE!!! UPDATE!!! We changed my daughters medication in November (2004). She has become an, almost, totally different person! She now has a sense of humor, amazing smile, and unbelievable sweetness about her. You can see the calmness in her eyes. It has been remarkable! I never would have imagined that life could be so wonderful! |
| Another update....02-22-05 Things have slowly begun to unravel. The highs and lows are not as extreme but, the behaviors are still there. There is the constant fighting, periodic screaming and crying, etc. But, the hours of listening to the screams have diminished to no more than about 45 minutes. (That is a lot better than the 3 to 4 hours...right?) I think that we all get to a point where we start to ask ourselves..."how much more can we take?". And, I begin to get irritated that we should all walk on eggshells if we want to even attempt to have a "peaceful" night. There begins to be lines drawn and the war begins... it is us on one side and the "bipolar child" on the other. If we want peace...we must sacrifice everything to accomplish that goal or we must be prepared to fight. How can anyone live with that decision night after night? |
| Hi. My name is Jami and I am the "creator" for this site. This site is the result of years of searching for help. In the "end", I finally decided that no other family should have to spend their days and nights trying to find the program that might make the difference in the life of their child. It has been fun working on this site with my older daughter and has offered me a way to "de-stress" online! So, in a way, this is my therapy. I am committed to doing whatever it takes to help my family and others' to support the children that are often overlooked. |
| My Babies: |
| I noticed several years ago that my daughter had difficulty in her reactions to the environment. There was the temper tantrums that lasted for hours, the biting and pulling hair, the attempt to jump out of the car, and so on. It has always taken extra effort to manage her. Even the family members that offered the "leave her with me and I'll take care of her" ultimatums would send her back and tell me that I needed to do something with her! I took her to therapy at 2 years of age. My divorce had just been finalized and I was concerned that the additional stress was causing some of the behaviors. The therapist reported that she was indeed "bothered" by the divorce as her "tree's look very sad". (She was always a very wonderful artist!) We experienced several moves before ending up in Indiana. Once settled here, I managed to get her into First Steps. She was only able to receive a few sessions since she was about to "age out" of the program. (She was about to turn 3 years.) The recommended diagnosis was Disruptive Behavior Disorder. There was also a "strong indication" of ADHD though, she was too young to diagnose. It was also suggested that she have a lead screening completed to rule out lead poisoning which can create behavioral difficulties. It came back within normal limits. We ceased therapy due to lack of insurance at that point. Why go to therapy if she was too young to do anything with? I decided to wait. What if it is just her "personality" or "age"? I should wait until she starts school and see if it presents a problem then. Right? She started Kindergarten right before she turned 6 years old. I was never called by the principal to come get her. Though, she was never called to receive the "Outstanding Citizenship" award either. (Despite the fact that everyone else in the class - minus one boy - did get the award.) This continued through first grade. The teacher and principal did discuss their concern about her "lack of focus" and "defiance" at times. She tended to daydream and become unresponsive during class. No kidding? Upon their request, we went to see another therapist. The therapist felt that it was depression, anxiety and PTSD. The psychiatrist said that it was Adjustment Disorder with chronic mood, then ADHD. His prescription...Tenex. Not good. Major problems afterwards! I immediately discontinued the medication. After a few more therapy sessions, I felt that their job was done since medication was their answer. And...I disagreed since "children shouldn't take medicine!" During 2nd grade, I finally got the special education evaluation that I had asked for over a year before. (I had to switch schools to get it.) The schools evaluation was that she was "Learning Disabled". She receives additional help 3 times per week. She started with a new therapist. Their interpretation was depression, anxiety and ADHD. She was prescribed Zoloft. That was another mistake! I took her off that medication. But, under the psychiatrists recommendation that "kids don't have 'psychotic' side effects on that medicine", I put her back on with the same results. I switched to the school-based therapy program. Meanwhile, the behavior at home was becoming more difficult to cope with. She would scream for hours on end, hurt people in the family, etc. I was ready to be "mentally ill". The therapist was...not very understanding, to say the least. It seems that my baby was able to "control" herself at school. That must mean that the problem is at home. Right? It seemed that I was in a constant battle to "prove" that I was not THAT deficient of a parent. I have read every book, went to every training, devoted my life to learning how to be a "good parent"...and it wasn't working! After consulting with her pediatrician, we decided to try her on Straterra for her ADHD. That was the worse decision! A few weeks later, she was truly psychotic. (The devil was inside her, why didn't she have wings since she was an angel...) And, then, I got the phone call to pick her up and take her to the hospital for admission! After 9 days without her, I got her back. She was diagnosed Major depression with psychosis and suicidal features, ODD and ADHD. She left the hospital on Risperdal, Paxil and Adderall XR. I was tattered and worn by that point. And, seeing the impact that her "thoughts" and actions had on her life...I knew that medication was our last resort. After a month, it still hadn't made much of a difference except that her "night terrors" were gone. We dc'd the Risperdal and started Abilify. After several months of increasing that combination of medication, she had to be hospitalized again. She had become so irritable that she was attacking everyone in the house. (Her 3 year old brother with a golf club.) She was admitted as being in a "manic" phase. She had actually acquired the diagnosis of bipolar several months prior while she was in a "special" summer camp. She was taken off the Paxil and Adderall XR and decreased on the Abilify. It was thought that the combination of meds were making her "irritable". Since she has been home, she has been somewhat more cooperative. But, still not at a "functioning" level. The mood swings still mainly happen at home. (How wonderful!) Her "swings" are not as extreme. And, she has not seriously hurt anyone recently. That brings us to the present day where I spend "down time" trying to figure out how to make things a little more manageable. I am fortunate to have been able to find some of the services that I felt would greatly assist her in learning better ways of coping. She has a school-based and home-based therapist. I feel that continued therapy, behavior modification and medication (unfortunately), she may be able to "control" some of her more extreme emotions. Of course, it seems to be an endless battle where the only sure thing is the moment. |
